PROMs style-guide University Hospital Basel
PRO part | Description | Example | |
Concept (PRO) name | Model as the full name of the PRO. If the name is also used as an acronym, model the name in capitals, including the acronym in brackets. If the most known name is an acronym, use the acronym as the name. | Patient Health Questionnaire-9 (PHQ-9) | |
Archetype ID | Same as concept name unless it is necessary to distinguish from another archetype with a similar name. | OBSERVATION.phq_9 | |
Concept description | Record an explanation of the concept being recorded (not the PRO itself). | ||
Purpose | Record the reason for using this archetype to record data, not to describe the purpose of the score or scale itself. Commence the first sentence with the standard phrase "To record..." unless there is a good reason not to do so. | ||
Use | (Record how the archetype might be used in implementation, not how to perform the assessment. Commence the first sentence with the standard phrase "Use to Additional information might provide guidance to modellers or implementers about how to utilise the archetype in templates or clinical systems. | ||
PRO-Question | RM Type | Use DV_Scale by default where applicable. |
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Label | Use short text representing the content of the question and include the question number if present in the PROM (as well as for superordinate clusters and answers to the question) | Short label: “1. Carrying groceries” (*see Full Question below) Short label: “2. Vision impairment” (*see Full Question below) | |
Description | Record the full text question including the number of the question and the exact wording. | Full text question: “1. I have trouble carrying groceries in my daily life.” Full text question: “2. I have a hard time reading traffic signs while driving.” | |
Comment | Add further info for explicit styling requirements necessary for PROM Validation. Add further information about conditional rendering. | Have “in the last 2 weeks” in bold font. If response “I felt dizzy” was selected ask questions 5, 6 and 7. (This might lead to broader acceptance since the datamodel is “helping” the implementor to create a faithful representation of the PROM) | |
Superordinate PRO-Instruction | Use Cluster if there is one parent-container for a group of | Cluster Label: “1. List of weekly activities” Cluster Description: “1. The Following is a list of activities that people do during the week. […] Go over the activities and indicate your level of limitation over the past weeks:” | |
Subordinate PRO-Question | Use the same as per PRO-Question. | Label: “1 b. Over the past 4 weeks, how Description: “1 b. Gardening, vacuuming or carrying groceries” etc… | |
Total Score | Naming of the total score or calculated ratio should not contain the name of the score or scale. | ||