2025-07-22 Minutes of CPB Meeting
Document status: Awaiting approval
Meeting Date: Tuesday 22nd July 2025
Meeting Time: 12:00-13:30 BST/13:00-14:30 CEST
Location: Virtual – Zoom
CHAIR: Vanessa Pereira
NOTE-TAKER: Vanessa Pereira / Hayley McDougall
Agenda
Welcome and Introductions -
Apologies - Paul Miller, Kanthan Theivendran, Vebjørn Arntzen, Heidi Koikkalainen, Silje Ljosland Bakke, Jannis Pesch, Andjela Pavlovic
Requests for AOB
Minutes of previous meeting CPB Minutes - 24th June 2025
Actions from minutes - Jira (Clinical Program Board | Board)
Archetype Translations (Heidi) - move to next meeting
European Union and EHDS (European Health Data Space) - Wouter
EHDS mapping (Joost)
openEHR FHIR Mappings - mapping governance process
Joint meeting with SEC
Update on Clinical Operations Program - Heather
EHRCON25
PROMs working group & ICHOM Collaboration
AOB
Attendance
PRESENT
Vanessa Pereira (CPB Co-Chair)
Joost Holslag (CPB)
Koray Atalag (CPB)
Lars Fuhrmann (CPB)
Heather Leslie (CPB EP)
Diego Bosca (SEC)
Severin Kohler (SEC)
APOLOGIES
Paul Miller (CPB Co-Chair)
Kanthan Theivendran (CPB)
Vebjørn Arntzen (CPB EP)
Heidi Koikkalainen (CPB)
Silje Ljosland Bakke (CPB EP)
Jannis Pesch (CPB)
Andjela Pavlovic (CPB)
ABSENT
Sebastian Garde (CPB)
John Tore Valand (CPB EP)
Tara Bonet (CPB)
Olha Nikolaieva (CPB)
Wouter Zanen (CPB)
Welcome and Introductions
Vanessa welcomed all CPB members to the meeting, also noting Severin and Diego were present. She noted that a number of members had sent apologies and raised the possibility of cancelling the August meeting due to expected low attendance.
Apologies
Apologies were received from Paul Miller, Kanthan Theivendran, Vebjørn Arntzen, Heidi Koikkalainen, Silje Ljosland Bakke, Jannis Pesch, Andjela Pavlovic
Requests for AOB
No additional items were raised.
Minutes of previous meeting CPB Minutes
The minutes were approved by Joost and seconded by Koray.
Actions from minutes - Jira
Clinical Program Board | Board
Outstanding actions were not discussed at this meeting.
Archetype Translations (Heidi)
As Heidi was not present at the meeting, this item will be deferred to the next meeting.
European Union and EHDS (European Health Data Space) - Wouter
Wouter was scheduled to speak on this item but was absent from the meeting. It was agreed that Agenda Items 6 and 7 are the same topic and would be discussed together under Item 7. Relevant notes have been captured there.
EHDS mapping (Joost)
Joost presented this item on behalf of Wouter.
He provided an overview of the European Health Data Space (EHDS) initiative, a significant EU project aiming to facilitate cross-border health data sharing. A dataset has been defined, and a FHIR profile is being developed as a specification for that dataset. Joost proposed forming a working group within the openEHR community to map openEHR artefacts (archetypes and potentially templates) to the EHDS FHIR profile. He highlighted the relevance of this work in the Netherlands, noting Wouter’s professional involvement via Nictiz (the Dutch national health IT organisation). Joost encouraged other members to get involved to support shared effort.
This introduction prompted an in-depth discussion on the broader EHDS project, involving Diego, Severin, and others. Key points included:
Coordination and Transparency: Members agreed on the importance of improving coordination and visibility of openEHR’s engagement with European initiatives.
Outreach and Alignment: Severin stressed the need for openEHR representation in EHDS modelling groups to ensure proper alignment and visibility. He noted this was a conversation that should involve Rachel directly.
Strategic Considerations: Heather acknowledged that openEHR is gaining credibility through its involvement with bodies such as JIC and CEN. She agreed with Severin’s recommendation that Rachel lead a broader organisational strategy.
Adoption Challenges: Koray mentioned working with European clients and the opportunity to expand openEHR’s presence in the EHDS ecosystem. Diego and Severin discussed the uneven progress of European Shared Data Spaces (ESDs), with some successful implementations and others abandoned.
Use of Archetypes: Lars inquired whether archetypes could serve as a roadmap for EHDS work. Severin highlighted a lack of transparency around current openEHR use in Europe, making it difficult to argue its relevance without better insight.
Political Barriers: The group raised concerns around Giorgio Cannelli’s role as consortia lead, which has been obstructive to openEHR’s adoption in some contexts. It was agreed this issue should be escalated at the next board meeting.
Next Steps: Vanessa will create a discussion thread on discourse to gather wider input from the community. Rachel to be consulted for strategic leadership on openEHR’s role in the EHDS.
Useful links:
Contact: Zoltan Lantos – zoltan.lantos@heiresearch.com
openEHR FHIR Mappings
Joost provided an update on follow-up actions from the previous CPB meeting, where it was agreed that the group needed a clearer understanding of FHIRconnect mapping and FHIR in general. A meeting was arranged with Joost, Heather, Silje, and Heidi; however, Silje was unavailable due to holidays. The group spent some time exploring FHIRconnect and FHIR from both clinical and technical perspectives, particularly in light of the recent collaboration with HL7.
Joost noted that differing viewpoints remain on how to proceed, especially given sensitivities on the FHIR side. As a result, a further meeting will be scheduled once Silje returns, to explore the technology in more depth and its governance implications. Joost will also align with Rachel to discuss the sensitivities around HL7. A fuller update is expected at the next CPB meeting.
mapping governance process
The governance process document for FHIR–openEHR mappings was also discussed. While there were initial thoughts about commenting directly on the document, Diego advised that important discussions might be lost in-line, and suggested using the Discourse platform instead. Severin noted that while some comments were made from a clinical angle, the document itself is intended to address technical governance.
The group clarified that the governance document focuses on data transformation processes, not modelling decisions. To avoid confusion, it was agreed to:
Separate discussions on modelling from those on technical mappings.
Use Discourse or face-to-face meetings for more in-depth conversation.
Provide a clear example on Discourse to help distinguish technical mappings from artefact meta-analysis.
Heather suggested reserving time at the Barcelona meeting in October for more comprehensive discussions on mapping approaches and tooling support. She also highlighted that the ecosystem may evolve to include:
“openEHR profiles”
“FHIR archetypes” (e.g. from Graham’s logical model work presented in Amsterdam)
mappings between the two
There is value in all approaches, she said, but the community needs cross-board discussions to determine direction, governance, and utility.
Review of Archetype Mappings
Severin and Diego raised the need for further review of the 185 archetype mappings, which involve straightforward technical transformations and are simpler than FHIRconnect mappings. Joost expressed interest in participating in the review process - potentially with funding - and estimated it would take several hours to a week.
It was agreed that:
Version 1 of the mappings should be released to support ongoing review.
Clinical review and quality assurance remain essential.
A clear review process should be established, especially for mappings intended for CKM inclusion.
Severin emphasised that, as medical informaticians, clinical interpretation is vital even in technical mappings.
Relevant Discourse link:
Mapping for OMOP/OMoCL – Reviewers Invited
Future Work and Funding
The group discussed the importance of aligning with mapping standards such as OMOP. Severin offered to guide others through the OMOP process. Joost proposed submitting a funding request to the Dutch Health Science Agency, which would include collaboration with an OMOP expert.
Heather reinforced the need for structured processes for review and quality assurance, suggesting a lower bar to encourage initial clinical engagement. The team agreed to continue current mapping efforts, gather more reviews, and revisit these topics at the October meeting.
Joint meeting with SEC
Diego provided an update regarding the upcoming pre-EHRCON25 meetings. Jordi has secured meeting rooms at Catsalut. The schedule is as follows:
Tuesday 14th October: SEC meeting
Wednesday 15th October (AM): Clinical modelling workshop
Wednesday 15th October (PM): Joint meeting of CPB and SEC
Further details can be found here:
🔗 SEC Call Notes – 21 July 2025
Vanessa confirmed that the EHR Network working group has been approved by the CPB. The group will collaborate with Severin. Vanessa plans to create the working group space on Confluence to facilitate coordination and documentation.
Update on Clinical Operations Program - Heather
Heather provided an update on the Clinical Operations Program, noting that progress has been slow partly due to the Norwegian team being away, but work continues with Keisha and Nicola on archetypes. Efforts include cleaning up exam archetypes to version 2, and Clara from the Catalan team has joined the modeling authority group, alongside Celia, Heather, and some Norwegian CKs. The group aims to meet regularly, with Tuesday afternoons proposed for meetings to build the modeling authority.
Keisha is coordinating the evolving editorial board, with more editors joining to enable distributed reviews. While progress is slow, it is steady, with the Catalan and Norwegian teams driving priorities and contributing resources. Heather emphasized careful, incremental growth and capacity building, with Lars also starting archetype development. Additionally, a fellow is focused on exercise and device sensor data modeling is underway and is expected to generate new archetypes.
Other groups are actively sending archetypes out for review, indicating ongoing activity despite limited coordination. Heather mentioned the upcoming broad meeting on Wednesday morning during EHRCON as a key event for the group.
EHRCON 25
Diego provided an update that Jordi has secured rooms at Catsalut for pre-EHRCON25 meetings. The SEC are meeting on Tuesday 14th, with a Clinical Modelling Workshop scheduled for the morning of Wednesday 15th and a joint meeting between CPB and SEC on the afternoon of Wednesday 15th.
Heather is planning to use Eventbrite for free tickets to the Clinical Modelling Workshop. Vanessa expressed interest in arranging a meeting with Heather and Silje to plan the workshop and will organise this after Silje returns from leave on 4th August.
Vanessa also advised that Abi reported tickets are selling fast and that the early bird offer is almost sold out. She noted that a cybersecurity conference is happening at the same time, which may affect accommodation availability, so attendees are encouraged to book early.
PROMs working group & ICHOM Collaboration -
Koray provided an update on the ICHOM collaboration, noting that further information was needed before a definitive update could be given. As there was insufficient material to provide a detailed report, the group agreed to reserve time in the next meeting for a fuller discussion.
AOB
No additional items were raised.
Vanessa closed the meeting by proposing to cancel the next CPB meeting, but no one objected to holding it. Joost agreed that even if only a few members attend, it is better to proceed with the meeting. Therefore, the next CPB meeting will go ahead as planned.
Next Meeting
DATE: Tuesday 19th August 2025
TIME: 12:00-13:30 (BST)
LOCATION:Virtual – Zoom