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2025-08-19 Minutes of CPB Meeting

2025-08-19 Minutes of CPB Meeting

Document status: In progress

Meeting Date: Tuesday 19th August 2025

Meeting Time: 12:00-13:30 BST/13:00-14:30 CEST

Location: Virtual – Zoom

CHAIR: Paul Miller

NOTE-TAKER: Hayley McDougall

Agenda

  1. Welcome and Introductions

    1. Apologies - Vanessa Pereira, Jannis Pesch, Silje Ljosland Bakke, Vebjørn Arntzen, Heather Leslie, John Tore Valand

  2. Requests for AOB

  3. Minutes of previous meeting CPB Minutes - 22nd July 2025

  4. Actions from minutes - Jira  (Clinical Program Board | Board)

  5. PROMs working group & ICHOM Collaboration (Koray) - 10-15 min update

  6. Archetype Translations (Heidi)

  7. EHDS (European Health Data Space)(Wouter & Joost)

  8. EHRCON25

  9. Clinical Modelling Workshop EHRCON25

  10. Update on Clinical Operations Program (Heather)

  11. openEHR FHIR Mappings

  12. EHR Network

  13. AOB

Attendance

PRESENT

  • Paul Miller (CPB Co-Chair)

  • Andjela Pavlovic (CPB)

  • Joost Holslag (CPB)

  • Kanthan Theivendran (CPB)

  • Koray Atalag (CPB)

  • Lars Fuhrmann (CPB)

  • Olha Nikolaieva (CPB)

  • Sebastian Garde (CPB)

  • Wouter Zanen (CPB)

  • Heidi Koikkalainen (CPB EP)

  • Keisha Barwise (openEHR)

APOLOGIES

  • Vanessa Pereira (CPB Co-Chair)

  • Jannis Pesch (CPB)

  • Heather Leslie (CPB EP)

  • John Tore Valand (CPB EP)

  • Silje Ljosland Bakke (CPB EP)

  • Vebjørn Arntzen (CPB EP)

ABSENT

  • Tara Bonet (CPB)

  1. Welcome and Introductions

Paul welcomed attendees to the meeting and shared a link to the agenda, noting the short notice and late publication. He briefly reviewed the agenda and highlighted that, in Heather’s absence, there may not be an update on the Clinical Operations Programme, and similarly, in Vanessa’s absence, there may be no update on the EHR Network.

Apologies received from: Vanessa Pereira, Jannis Pesch, Silje Ljosland Bakke, Vebjørn Arntzen, Heather Leslie, and John Tore Valand.

 

  1. Requests for AOB

No requests for Any Other Business (AOB) were noted.

 

  1. Minutes of previous meeting CPB Minutes

Paul reviewed the minutes from the CPB meeting held on 22nd July 2025. Joost and Sebastian highlighted a possible error in Agenda Item 8 – openEHR FHIR mappings.

The CPB agreed that the minutes would not be approved or seconded until the terminology in Agenda Item 8 is confirmed or amended. This review should be completed before the September meeting.

  • Action/Outcome:

    • Joost to investigate the potential mistake in Agenda Item 8 – openEHR FHIR mappings from the 22nd July 2025 meeting.

    • Hayley to ensure the minutes are reviewed and approved by the September meeting.

 

  1. Actions from minutes - Jira

Paul reviewed the outstanding actions in Jira: Clinical Program Board | Board. He noted that the actions marked In Progress corresponded to items on the current meeting agenda.

Joost raised that the openEHR mapping action (CPB-86) may need to be reclassified as In Progress, as work has been ongoing outside of the CPB.

 

  1. PROMs working group & ICHOM Collaboration (Koray)

Koray presented to the CPB on the International Consortium for Health Outcomes Measurement (ICHOM), outlining who they are, what they do, and how they operate. He explained that ICHOM defines standard sets for specific conditions, which include clinical, administrative, and patient-reported outcomes data.

As part of his presentation, Koray shared ICHOM’s website and provided the Non-metastatic Breast Cancer Standard set as an example of the standard sets offered.

Koray emphasised that a collaboration with ICHOM could be highly beneficial for openEHR, given ICHOM’s membership, implementations, and global healthcare impact. He informed the Board that he has already initiated conversations within ICHOM. However, the key individual with whom discussions should progress is currently on summer leave, so formal conversations are paused. Koray wished to share this information in advance, especially for those on the CPB who were unfamiliar with ICHOM.

Kanthan expressed his strong support for collaboration, noting that he will be speaking at the ICHOM 2025 Conference in Dublin at the end of September. He observed that ICHOM often references HL7 and FHIR in discussions on data, but their outreach to openEHR through conversations with Rachel and Koray, along with his own speaking invitation, suggests a growing recognition of the value of openEHR collaboration.

Kanthan further suggested that CPB/openEHR should also consider exploring opportunities with Mobilizing Computable Biomedical Knowledge (MCBK). 

The Board engaged in an in-depth discussion regarding ICHOM, PROMs, and existing relationship connections.

Presentation request: Sent to Koray for inclusion with the minutes.

  • Action/Outcome:

    • Koray and Kanthan to follow up with ICHOM representatives regarding potential partnership discussions.

    • Kanthan to report back following the ICHOM 2025 Conference in Dublin (end of September).

    • Heather to provide a PROMs update at the next meeting.

 

  1. Archetype Translations (Heidi)

Heidi raised the topic of archetype translations, noting that there has been an ongoing discussion on discourse involving openEHR Sweden, with contributions from several CPB members. She reminded the Board that similar questions had previously been raised by Finland when attempting archetype translations into Finnish, though that work had since been put on hold.

Heidi acknowledged that an in-depth discussion was not possible in this meeting, particularly in the absence of the CKAs (Heather and Silje). However, she proposed that the CPB consider establishing a working group to define best practices for archetype translations.

Olha noted that University Hospital Basel would be willing to participate. She explained that during their current work with PROMs they discovered the need to have each archetype template used translated into English, German, French, and Italian.

  • Action/Outcome:

    • Heidi to email Heather and Silje regarding the Archetype Translations discussion.

    • Archetype Translations to remain on the agenda for the next meeting, with potential for a vote on establishing a working group.

 

  1. EHDS (European Health Data Space)(Wouter & Joost)

Wouter updated the CPB on the European Health Data Space (EHDS) consultations, noting that current EHDS models are primarily FHIR-based. He suggested there is an opportunity to incorporate openEHR identifiers and proposed forming a working group to compare and map openEHR archetypes to EHDS models. While open to community participation, he recommended that this work should be monitored by the CPB.

Joost raised a question on the relationship between the European Patient Summary (EPS) and the International Patient Summary (IPS). Wouter advised that, in principle, these should align, but differences in funding models (EPS being government-funded, IPS organisationally funded) mean they may not fully match. Joost suggested it may be more effective for openEHR to concentrate on IPS, where mappings already exist, and then extend to cover EPS. Wouter agreed this was a sensible approach, but noted that certain domains (e-dispensation, discharge, imaging, and test results) are included in EPS but not IPS, which would complicate alignment. This prompted a detailed discussion on which areas overlap and which diverge. Wouter emphasised that while this is not an urgent issue, it would be strategically beneficial for openEHR to begin the work now in order to influence the process before implementation, when it would be too late.

Following the previous CPB meeting, Joost had contacted Rachel, who confirmed she is working to promote openEHR as logical models in this space. However, she highlighted that she is largely pursuing this alone and is limited in how far she can push the agenda. Joost noted that, apart from Severin, there has been limited support, and argued that more dedicated time and resources are needed to make meaningful progress. He suggested that this should be escalated to the openEHR Board.

The CPB agreed that the current priority should be the political dimension: ensuring openEHR is visible and included as part of the EHDS/EPS modelling discussions.

  • Action/Outcome:

    • Wouter to create a Discourse post about EHDS to raise broader awareness.

    • Wouter to contact Silje to strategise on coordinating EHDS consultation responses between countries.

    • Paul and/or Vanessa (Co-Chairs) to raise the EHDS topic with the openEHR Board, emphasising CPB’s view that this work should be prioritised. (Next xBSG meeting: 10 September.)

    • CPB members to respond to Silje’s post on EHDS consultation to coordinate national responses across Europe.

 

  1. EHRCON25

Paul reported that there were no further updates at this time.

 

  1. Clinical Modelling Workshop EHRCON25

Paul noted from the previous minutes that Vanessa, Heather, and Silje were leading the organisation of the workshop and were planning to ticket the event.

Joost asked about the target audience, as he had a contact interested in attending who is new to clinical modelling. Paul suggested that, while the CPB could decide, he personally believed the workshop should be open to anyone interested in engaging. He advised that Silje and Heather would provide a definitive answer.

 

  1. Update on Clinical Operations Program (Heather)

Paul noted that, with Heather absent and Keisha having dropped off the call prior to this agenda item, no update on the Clinical Operations Programme was provided.

 

  1. openEHR FHIR Mappings

Joost reported that a working group exists for openEHR FHIR mappings, but it had not met this month due to leave and summer holidays. He hopes to provide an update at the next meeting.

 

  1. EHR Network

Vanessa was not present to provide an update. Paul shared the working group space Confluence that Vanessa had created.

Koray raised concerns regarding whether governance of the space had been transferred to openEHR or if it remained open, noting potential copyright issues. He suggested that Severin or Vanessa would be best placed to provide clarification.

 

  1. AOB

No AOB items were raised.

 

Paul closed the meeting by thanking the CPB members and expressed hope for greater attendance at the next meeting, noting that with summer holidays over, a busier session is anticipated.

Actions

  • Joost to investigate the potential mistake in Agenda Item 8 – openEHR FHIR mappings from the 22nd July 2025 meeting.

  • Hayley to ensure the minutes are reviewed and approved by the September meeting.

  • Koray and Kanthan to follow up with ICHOM representatives regarding potential partnership discussions.

  • Kanthan to report back following the ICHOM 2025 Conference in Dublin (end of September).

  • Heather to provide a PROMs update at the next meeting.

  • Wouter to create a Discourse post about EHDS to raise broader awareness.

  • Wouter to contact Silje to strategise on coordinating EHDS consultation responses between countries.

  • Paul and/or Vanessa (Co-Chairs) to raise the EHDS topic with the openEHR Board, emphasising CPB’s view that this work should be prioritised. (Next xBSG meeting: 10 September.)

  • CPB members to respond to Silje’s post on EHDS consultation to coordinate national responses across Europe.

  • Heather and Silje to clarify and comment on the target audience for the Clinical Modelling Workshop at EHRCON25.

Next Meeting 

DATE: Tuesday 23rd September 2025

TIME: 12:00-13:30 BST/13:00-14:30 CEST

LOCATION:Virtual – Zoom