Purpose

When

social evening 15 Sep

16 Sep 2014: 09:00 - 17:00

17 Sep 2014: 09:00 - 16:00

Where

DIPS offices central Oslo. DIPS asa, the leading EHR vendor in Norway has very kindly provided office space in their building next to Oslo central station for this meeting.

Hotels - there are numerous good hotels in Oslo. Here are some suggestions

Due to a scheduling conflict (we rent our office space in Oslo from Deloitte), we have had to move the meeting to a different location. For those of you coming in by air, it will actually shorten your travel, as the new venue now is

Lillestrøm Kultursenter in Lillestrøm (Lillestrøm Culture Center), adr: Kirkegata 11, Lillestrøm.

As it happens, this is the little town just outside Oslo where I live, and it is just 12 minutes from Oslo Airport Gardermoen by train.

How to get there:

From Oslo Airport Gardermoen take the Airport Express Train to Lillestrøm. Note that only every second train stops at Lillestrøm, this would be the trains departing at 10, 30 and 50 minutes past the hour, marked Drammen. The trains marked Oslo will not stop at Lillestrøm.

The Airport Express Train is a bit pricy (130 NOK), so you could consider taking the Regional Train departing from the same station (take a left before the turnstiles of the Airport Express). During normal hours it departs at 03 and 43 every hour, and goes just as fast. The price is about the half, as long as you buy your ticket from the vending machine at the airport (and not onboard the train). The difference will buy you almost one - 1 - beer at a low end bar. A 24 hour pass for 4 sones (required to get from Airport to Center Oslo) is 190 NOK.

Upon arriving in Lillestrøm, the venue will be on your 10 o'clock when departing the station (provided you used the correct exit, if you make a left at the bottom of the stairs from the platform, you'll be OK.

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Where to stay:

There aren't that many hotels in Lillestrøm. Thon Arena is the best, Thon Lillestrøm i OK, and Fagerborg a little less than OK (but it has a colorful history). All of them are within walking distance. http://www.thonhotels.no/

Staying in Central Oslo is not a problem, the train takes about 10 minutes (as long as you avoid the local train) and cost 50 NOK. Prices will be more or less the same.

Participation

Registration

Register here - physical space limited. Please do not use this registration unless you actually intend to physically be at the meeting.

Social Events

Monday night

beer and strategy!

Café Skansen

7 pm ish for drinks. This is close to the main train station. Many restaurants and other bars close by.

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Social Events

Tuesday night

keeping the discussions going

Restaurant Salsa
Huitfeldtsgate 25

 7 pm 

After a long day of discussions and ideas, we move in to the center of Oslo for a few drinks and something to eat around 7 pm on Tuesday. We have reserved a section in an informal tapas-kinda place where we will be able to grab something to eat, get a few drinks and best of all, continue our discussions as the manager has promised me to keep the music down.

Restaurant Salsa ( salsa.no ) is situated close to National theatre railway station and Aker Brygge. The adress is Huitfeldtsgate 25.

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Purpose

When

16 Sep 2014: 09:00 - 17:00

17 Sep 2014: 09:00 - 16:00

Where

Due to a scheduling conflict (we rent our office space in Oslo from Deloitte), we have had to move the meeting to a different location. For those of you coming in by air, it will actually shorten your travel, as the new venue now is

Lillestrøm Kultursenter in Lillestrøm (Lillestrøm Culture Center), adr: Kirkegata 11, Lillestrøm.

Participation

Social Events

Monday night

Café Skansen

Social Events

Tuesday night

Restaurant Salsa
Huitfeldtsgate 25

 7 pm

Intro - scene setting

Meeting goals

Priorities

2 mins from anyone on the floor

facilitator: T Beale

TB opening remarks slides PDF.

Original TB blog post on key criteria for investible standards.

Priorities mentioned during introductions:

• Entry level openEHR - getting started is too hard
• Deal with licensing FUD
• Support for localisation, affiliate groups
• restarting specifications release work

Ian McNicoll
Tomaz Gornik 

Ian McNicoll presentation on new board structure.

Questions raised:

• articles of association / statutes / by-laws - where are they defined? Gunnar Klein
• registering trademark outside of Europe
• what is UCL's role? Why not independently registered as a company? Does UCL need to be involved?
• Erik Sundvall: need to be able to fork specifications; requires different license.

Actions:

• Licensing was recently discussed in a thread in an openEHR LinkedIN-group https://www.linkedin.com/groups/Membership-144276.S.5909661200660054019 and was briefly discussed here too.
  • Silje: Reuse of wikipedia text snippets (CC-BY-SA) in commercial newspapers has worked, this might be similar to deriving things from CC-BY-SA licensed archetypes.
  • Erik: We may need to be able to fork specifications; requires different license than CC-BY-ND (e.g. CC-BY instead).

Actions:

• Gunnar K offered to help with draft & review of statutes etc
• Text of membership page needs to be changed to reflect 15€ membership idea. Ian M / Adriana
• General feeling is to change org diagram so that 'second board' is a management committee including program leads(not a board) including e.g. program leads

Gunnar Klein: some reflections on formalising and simplifying the description of the openEHR governance.

HANDI / NHS

Ian McNicoll presentation on HANDI-HOPD

Demo platform being managed by HANDI, not NHS but is being supported by NHS England.

Proposal to use this as the basis for an open-source hospital e-prescribing project, making use of SMART, FHIR and openEHR.

Already involving some European companies, including Marand. Others have offered support.

Questions:

• How do we make the openEHR engagement more active and visible?

Conformance, APIs

openEHR inVivo

Decisions needed:

• rough definition of conformance specifications to create

Tomaz intro:

• IHE approach - publicly announce compliance profiles; required to go to connectathon and demonstrate interop with 2 or more other products; monitors give certification.

detailed notes here.

Actions:

• a technical group will get together and generate a draft conformance approach based on the notes above:
  • Borut Fabjan, Bostjan Lah (Marand), DIPS, Rong (Cambio), Code24, Thomas Beale (Ocean)

Decisions needed:

• conversion of specifications from FrameMaker to alternative format, e.g. AsciiDoc, DITA...
• agree lightweight change process

TB explained current status quo of releases and tooling.

Actions:

• review specifications governance - TB, Erik Sundvall, Gunnar Klein
• agreed Asciidoc as candidate new doc toolchain - Bostjan, Fabio, TB to research and provide a proposal
• provide a tooling and specifications roadmap overview (S From, DIPS)

Questions:

• how to move to tool-based UML, integrated with documentation?
• tool-based class definition tables? Obtainable from UML tool?

Decisions needed:

• GDL needs to become a proper specification

Archetype tooling and ADL 1.5

• Archetype editor, Template designer
• EhrExplorer

Archetype tooling and ADL 1.5

• Archetype editor, Template designer
• EhrExplorer

T Beale
Borut Fabjan
Rong
... 

Decisions needed:

• what version to rename ADL 1.5 to, since it is now no longer directly compatible with ADL 1.4
• what approach to migrating from ADL 1.4 to ADL 1.x .... 2.*

Actions:

• agreed to rename current ADL 1.5 spec to 2.x
• agreed in principle on a community tooling project in Java / js / web UI

Clinical modelling

• development sprint
• editorial team
• model of sharing, versioning

fac: Ian

Heather

Tomaz

Decisions needed:

• agreement on mode of action on 'industry sprint'

See this wiki page for main description.

Candidate archetype list.

CKM Project page

Heather:

• about 30 / 30 / 30% easy / medium / hard
• need to have industry partners involvement to the extent of reviewing to-be-published archetypes for their use (i.e. for implementation).
• publishing - important PR exercise

Agreements

• It was agreed that some new editors will come on board for the sprint.
• It was stated that full terminology bindings would be developed in a following phase; however epSOS terminology coverage will be reviewed during the exercise.
• need to include some example data for each? archetype

Main terminology bindings would better be done by IHTSDO involvement with CIMI. Potential contacts - Daniel Karlsson, Linda Bird.

Possible synchronisation with Norway archetype development; contact Silje

Clinical model sharing issues across CKMs

openEHR CKM status

fac: Ian

Erik/ Ian M: we can potentially use Git-style methods to mechanically implement the fork / pull request lifecycle.

Heather: right now, Change Request mechanism being added to CKM in next release, but only works for archetypes already in existence.

Question: how to submit a new archetype from a national program that doesn't exist in CKM yet.

Martin vd Meer: need better documentation on how to do clinical modelling.

Ian: could even use Stackoverflow as a help site.

National openEHR updates

• Sweden
• Norway experience, methodology
• Japan
• Spain / 13606
• Australia
• Slovenia
• UK - NHS/FHIR

Erik S

Silje

Shinji

David Moner

Hugh Leslie

Ian

Norway (Silje):

• Silje presentation (PPT).
• Norway CKM http://arketyper.no now live.
• 100 CKM users now; Do-ocracy (who does, decides); 35 active current clinicians
• CKM essential to the process
• good quality clinical input so far

Sweden (Erik Sundvall)

• some previous experiments with openEHR not very successful
• Cambio COSMIC 8.1 will include archetypes; 8.2 - 'archetypes for real'
• ~1m population coverage of council orgs will use this
• 2 council archetype modellers attended clinical modelling course.
• demos underway to get funding for long term activity
• Gunnar: SKL doing some activity again; official activity mostly unknown due to new govt.

Brazil / Sweden (Erik Sundvall)

• Sergio Freire - guest Post-doc in Sweden 2013. Large epidemiology DB published in brazil - Sergio devised archetypes and method to convert data to openEHR for clinical querying.

 Japan (Shinji)

• Seminars every 2 - 3 months; including vendor attendees
• 2 national projects: Medical Markup Language - being applied / re-engineered using archetypes.
• Ruby implementation

Asia:

• ASEAN unification program starts 2015 - opportunities in health information network.
• Huge advantage - mostly green field technology wise

Australia & NZ (Heather Leslie)

• Nehta using CKM for 3-4y to generate their models underlying CDA and other end-use (non-openEHR) PCEHR artefacts; PCEHR development now on hold
• Archetypes are basis for PCEHR messages from GP systems.
• Northern Territory now main user and driver of modelling, due to indigenous health needs. Using an atomised openEHR data repository.
• Remote clinical mentoring by Ocean of NT clinicians
• Nehta archetypes being used natively in Ocean openEHR solutions
  

Spain / 13606 (David Moner)

• slides PPT
• main gov priority - interop / data sharing between 17 regions
• 10 clinical documents defined by MOH in form of 13606 archetypes
• MOH review of archetypes currently underway
• 13606 will be long term direction for data interop between regions; archetype based
• Probably ADL 1.5 of more interest?
• MOH is funding training activities in Snomet, 13606.
• Pilots / projects in 5 regions - main ones - Madrid, Valencia

Slovenia:

• Gov will procure national openEHR-based EHR server
• CKM running but engagement of clinicians very difficult; progress is slow
• New projects have to conform to archetype-based openEHR data.
• PARENT FP7 registries project being run from Slovenia
• Marand / Critical won Unimed (private health insurance) contract; 6m patients
• Saudi Arabia tender for CKM and archetype and training services
• some openEHR modelling activity in IRAN
• Moscow city project - rolling out to 2m patients

Netherlands

• Gov - HL7v3 as basis for interop; not interested in how data are stored
• Code24 implems in mental institutions at this stage; mostly using international CKM archetypes + some new archetypes.
• somme DCM model development

UK (Ian McNicoll)

• national project (NPfIT) lessons: top-down approach didn't work; no more HL7v3; possibly some CDA
• NHS likely to move to FHIR;
• GP systems are contractually required their APIs - will be FHIR

Decisions needed:

• need to fund dedicated openEHR.org server, allowing multiple sub-domain websites, Jira, etc
• need to agree on sysadmin responsibility

Web / e-presence

• solicit requirements
• web site ideas
• educational materials
• entry points

fac: TB

Heather

Adriana Danilakova

all

National openEHR updates

• Sweden
• Norway experience, methodology
• Japan
• Spain
• Australia
• Slovenia
• UK - NHS/FHIR

Erik S

Silje

Shinji

David Moner

Hugh Leslie

Ian

Details on this page.

Decisions needed:

• need to fund dedicated openEHR.org server, allowing multiple sub-domain websites, Jira, etc
• need to agree on sysadmin responsibility

Decisions:

• move to new Linux server at Hetzner
• sysadmin human resource from Ocean, Marand, DIPS, Code24
  • requires initial funds to be available

Web / e-presence

• solicit requirements
• web site ideas
• educational materials
• entry points

fac: TB

Heather

Adriana Danilakova

all

FHIR + SMART, IHE - technical, EN ISO 13606

• DIPS & FHIR 10 mins
• Marand update 10 mins
• IHE - Marand
• T Beale - archetype-based approach 10 mins

T Beale
Borut Fabjan
DIPS 

Decisions needed:

• openEHR approach to FHIR
• openEHR and IHE
• openEHR and EN ISO 13606

fac: Ian M

Shinji

FHIR + SMART, IHE - technical, EN ISO 13606

• DIPS & FHIR 10 mins
• Marand update 10 mins
• IHE - Marand
• T Beale - archetype-based approach 10 mins

T Beale
Borut Fabjan
DIPS 

Decisions needed:

• openEHR approach to FHIR
• openEHR and IHE
• openEHR and EN ISO 13606

Borut Fabjan openEHR / IHE / FHIR presentation.

Room agreed that

• we need to create an openEHR technical position on IHE and FHIR
• model-based approach to FHIR makes more sense than manually built resources

fac: Ian M

Shinji

Notes from Shinji:

1. Endorsement - There are some local activities on openEHR all over the world, but no endorsement. We need to decide if openEHR endorse such local activity or not.
2. Autonomy - It is easier for locals to have f2f meeting and seminar than globals. Gathering membership and money would be easier, too. Then, does such locals have oblige to share money to the openEHR.org? If locals published a book on the openEHR with regards to the official documents of the openEHR specs, can they use money only for their funds for the local activities?
3. Privileges on the openEHR organisation - After I launched openEHR.jp, I and other persons have pointed out these problems time to time, but no progress and no answers are available, indeed. I would like to request to make a localisation director who has privileges on this matter. I think Koray would deserve it.

Agreed on call among key implementers to build a description of a tool, and rough project definition:

• Ocean - TB, Seref Arikan, Sebastian
• Marand - Bostjan, Borut, Marko
• Code24 - Sebastian Iancu
• DIPS - TBD (contact Bjorn Naess)
• RaySearch - TBD
• Erik Sundvall (openEHR software program coordinator)